While increasing numbers of children and youth in Ontario are living with diabetes, we do not have a comprehensive understanding of the characteristics and health outcomes of children and youth living with diabetes in Ontario.
To address this gap, PCMCH and the Better Outcomes Registry & Network (BORN) Ontario have partnered to expand BORN’s prescribed registry to include paediatric diabetes data from Ontario’s paediatric diabetes education programs (PDEPs). By the end of fiscal year 2026/27, all 35 PDEPs across Ontario will share their patient and patient visit data to the BORN Information System (BIS).
These data will be crucial to help us better understand, monitor and address disparities in paediatric diabetes care and health outcomes in Ontario. With BORN Ontario and other health system partners, PCMCH will use paediatric diabetes data to monitor health outcomes, quality of care and benchmark performance, describe patterns of treatment, identify advocacy opportunities, and more.
Funded by the Ministry of Health, the development and implementation of the provincial paediatric diabetes data initiative is informed by members of the PDN (staff from PDEPs), research and clinical experts, health system partners, and importantly, people with lived experience of diabetes (parents and young adults). To learn more about who is involved in this initiative, what is included in the paediatric diabetes data dictionary, and more, please visit the BORN Ontario website or contact PDR@BORNOntario.ca.
*Commonly known as the Paediatric Diabetes Registry (PDR), the PDR is not a stand-alone entity but an extension of BORN’s existing registry and as such we have renamed the project here to more accurately reflect this.