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What is CCKO? 

In the Fall of 2015, the Provincial Council for Maternal and Child Health (PCMCH) launched the implementation phase of the Complex Care for Kids Ontario (CCKO) strategy.

CCKO is a multi-year provincial strategy to advance province-wide access to integrated medical care and coordination for children with the most complex chronic health care needs and their families. This work will start with Children with Medical Complexity (children with complex conditions requiring intensive care from multiple specialists) who are Medically Fragile Technology Dependent (meaning children with chronic physical conditions requiring prolonged, specialized care using technology, for example a trach). CCKO will establish effective linkages among healthcare providers and build capacity to support Children with Medical Complexity in their communities as close to home as possible.

 

Working with families 

Engaging patients and families is a critical piece to the overall success of CCKO. Our level of patient involvement has been integrated since the beginning of the CCKO strategy ensuring representation from families is embedded into all aspects of the planning, design, implementation and rollout of CCKO.

Recently, CCKO worked together with Children’s Hospital – London Health Sciences Centre (LHSC), Children’s Hospital of Eastern Ontario (CHEO), and McMaster Children’s Hospital to meet with families and stakeholders (for example, hospital leaders, front line staff, Community Care Access Centres and LHINs) to learn and share how we can effectively continue to improve care for children with complex medical needs.

The objectives for the family engagement sessions were:

– To share with families the implementation of the CCKO strategy and to hear from the Complex Care team in their region

– To provide an opportunity for families to share their stories and draw on their experiences to have an informed discussion about medical care and coordination in Ontario

– To discuss what is needed to improve child and family-centred care for children with complex care needs receiving services through the region

In total, more than 100 participants, representing families and the full spectrum of stakeholders, came together to share and discuss what matters most, locally and provincially, for integrated medical care and coordination for children with the most complex health care needs and their families. Families and stakeholders had an opportunity to hear about local and provincial updates, hear family testimonies, and actively participate in family focused activities to discuss ideal state, challenges and barriers to care, and contribute to a current state value stream mapping exercise for quality improvement.

 

What attendees said about the sessions: 

 Hearing family stories, affirmation that we aren’t alone. Seeing that the doctors recognize and understand our challenges and are trying to improve

– Participant One

 Meeting other parents, hearing that we share similar experiences and similar concerns when it comes to streamline care for complex care children

Participant Two

  Thank you for your efforts, and providing an opportunity for families to be heard

– Participant Three

 Thanks for organizing and inviting broad spectrum of people – families, HCPs [health care providers], administration. Look forward for chance continue to learn from families

– Participant Four

#CCKO 

Follow us on twitter – @PCMCH_ON and #CCKO – or facebook for social media updates on our activities.

 

For more information, please contact:

Mary Ellen Salenieks
Senior Program Manager
416-813-7654 x 207576

maryellen.salenieks@pcmch.on.ca